Thursday, June 11, 2009

Reporting from the cocoon!

This is the moment I have been waiting for 20 months - the beginning of the end.
I am now locked in a clean hospital room for three weeks, where my recovery begins with the stem cell transplant.
After such a long treatment you don’t know what to expect. I read the materials, interviewed someone who has done it, talked to the nurses, but the real thing is when you go in. At least mentally, I was calm and ready.
Thanks to the love and support of my family, I checked in last night in a relatively very good shape. This is a good start.
From now it is three weeks and then recovery at home.
As expected, the closer I got to this milestone, everything was more difficult.
Last week I went to the process of stem cell harvesting. First, for five days I gave myself injections to induce their growth. Then for three days, 6-7 hours at a time, I was hooked to a big machine (picture below) where the stem cells were collected. This was a much tougher process than I anticipated.
Anyhow, this is all behind me and I am in the cocoon!
The medical team here calls the stem cell transplant as D-Day! I didn’t know it before, when I wrote the last update. Everything is related to the day I am getting back my clean stem cells via a blood infusion. This will happen on my third day. So today is D-2 and the release date should be D+18, etc.
The good surprise is that the hospital is very accommodating family visits. Everyone has to wear masks and gloves and the key is to protect me from ANY infection while my immune system goes down, before it goes up again.

Knowing that I will be locked in for three weeks, my schedule in the past 10 days has been hectic. I also knew that once I start the process, there will be certain restrictions that will last months. For example, no restaurants for six months, no fresh vegetables and fruits for many months, no Sushi forever, no large crowds, etc.
Therefore, I was on a roll!
Shoshi and I went to eat outside several times, went to see friends, see a magnificent dance show, and more.

Last Sunday we had a graduation party with over 80 friends. There were many reasons to celebrate: Neta’s university graduation, Lior’s high school graduation, Inbal & Pierre graduation from being single and my graduation from 20 months of treatments. Our good friend Hana volunteered to host in her beautiful house and Shoshi with a few girls worked hard on the preparations – food, flowers, and much more. The weather was on our side.
It was a memorable afternoon with good company, sunny beautiful garden, good atmosphere, happy friends and lots of good food.
It was also my opportunity to say a temporary goodbye to our many friends.
On the following Monday afternoon we attended Lior’s high school graduation.
When I saw her marching in her white graduation gown and hat, I realized how fast time flies. It was only yesterday that we came to Needham and she was a toddler.
I am sure that on this occasion she is as happy as I am.
And so as Neta is out of a university, Lior goes into one in Sep. It helps, but it wasn’t planned.
Inbal and Pierre are so lovely. It is a bonus to be around loving people. Their plan is to return to Africa in Sep. and I will miss them a lot.
Last Tuesday (yesterday) was a long day. I suddenly realized that I haven’t even started packing. Eventually I did and in the evening the Alon family and Pierre went to the hospital in Boston.
I don’t think the nurses have seen such a large entourage on a restricted floor. It was great to have all the family with me, helping to settle down physically and mentally: disinfecting my belongings, hanging posters, talking and having a good time – all six of us in a small room!
As I got my first chemo today, a lot of thoughts crossed my mind.
I couldn’t be that strong if I hadn’t such a family. My spirit was free of worries and I could focus on coping with the long treatment. Coupled with very good friends and colleagues, I am really very lucky.
At this final stage, the strength I gained so far will be instrumental in my recovery.
And so, for the next three weeks I go nowhere. I set my office in the room, I have DVDs, music, books and lots of work to do. I plan to be in full communication with the outside world via phone, email and Skype.

Optimistic as usual,
Yours,
Guy

7 comments:

Unknown said...

Guy,

I wish you all the best and good luck - looking forward to see you out of the coccon.


Dror

Reuven Goldshtein said...

Dear Guy.

I keep my full belive that you will be back in good shape.
Wish you good luck in your marathon
race as we are waitting for you at the finish line with great hope to see you as the great champion.

Yours
Robby

Kitrifoto said...

Dear brother
we are with you at your room 24/7,
watching the radar screens, so don't try to do any maneuvers, but the 67 trick is allowed and also recomended.
as Robby has said, we are waiting at the finish line with flowers and bottles.
hugs
love you
Danny

Linds said...

Keep us updated! I've been speaking with Inbal and wish you the best of luck through this last stretch. You have worked so hard and you are almost there.

Thinking of you now and always
Lindsey

Unknown said...

בהצלחה יקירי אנחנו איתך,באהבה רבה משפחת אייזנברג המורחבת.

Bennys said...

Hi Guy,
As always, I admire your spirit and somehow it doesn't surprise me as this is the way I know you for the past 15+ years.

I hope to hear good news ASAP.

Warm regards,
Benny S.

Rami said...

הי גיא,

פשוט מדהים לקרוא. כל כך מחדש את האמונה בבני אדם. פשוט כיף לראות את הנחישות, האופטימיות שלך.

לקרוא את הבלוג זה קצת כמו בספר מתח, כשאתה יודע שיהיה סוף טוב, אבל רוצה להגיע כבר לעמוד האחרון ולראות איך הכל נפתר.

מחזיק כל אצבע אפשרית.

רמי ישק