Saturday, July 11, 2009

One more hurdle

Dear all
I am back at home, sweet home. Needless to say, it is muuuuuuch better than any hospital. The family support was much needed. They came to be with me every day and it was so good.
Shortly after being admitted, the chemo messed up my digestive system so bad that I could not eat or drink on my own.
As a result I got everything through the veins. The last week in the hospital was difficult. I felt the need to get out. Three weeks was more than enough. I started to negotiate with the doctors the conditions to go home. Usually they don't like to discharge patients in my condition who will have to rely on home care with IVs for food and fluids.
Finally they agreed and this is how I managed to get home.
As we speak I still can't eat or drink (although I very much want to). This is an unpleasant hurdle on the way to recovery.
Every day I get a 2L bag of nutrition through my vein and a bag of liquid too. The process is easy and I can do it myself or with the great help of Shoshy and Inbal. The challenge is to manage the occasional pain and nausea.
Now the question is how long? I need the time to let the digestive system to recover. I don't have a clue as to how long.
On the positive side, my numbers look great. As a result, all the severe restrictions are somewhat relaxed and I am more free to go out, see our friends, etc. The weather here is beautiful, sunny and not too hot. I take 1-2 walks a day and in general try to spend time outside in our beautiful garden.
July is a month of transition. Soon, Lior will come back from Israel, Pierre and Inbal will leave for France for a month and Neta for Spain for three months. In September everything will change again: Lior will go to college and Pierre and Inbal will move to Uganda.
This is the quick update for now. Pictures next time.
Let's hope that by the next update I'll be able to drink and eat on my own!
Yours always optimistic,
Guy

Friday, July 3, 2009

Getting my independence

Tomorrow is July 4th – US Independence Day.
Today, July 3rd, I am getting my independence!
After 24 days in the cocoon, I will be released. I can’t wait to go home.
It has been a lot tougher than I anticipated. Managing the mental side was relatively easy: small room, nothing exciting, etc.
The complications came from an unexpected angle: food and drink. Shortly after getting in and the two rounds of chemo, my appetite went bust. As a result, since June 13th I wasn’t able to drink or eat on my own. I still can’t drink or eat as we speak!
The alternative is getting everything through the veins. In addition I didn’t feel well most of the time, with occasional vomiting, etc. Not a pretty picture.
On the positive side I was very lucky to have my family support. Everyone came to see me: Shoshy, Inbal, Pierre, Neta and Lior. At least I had good company and support at times when the spirit was low or during other periods where help was needed.
After negotiating with the doctors we came with a plan: go home and continue to get the liquid and food infusions at home! The logic was simple: I am certain that at home I’ll feel a lot better and will start to drink and eat on my own.
So, in a few hours I’ll go home with a great hope that all this infusion business will be a matter of a few days only.
Going forward, I will have to come back for periodic check-ups. At home I’ll have to maintain some isolation guidelines which are part of the recovery process. My numbers look good and we hope for the best.
So this is it, one more chapter is winding down and a new one will start soon.
Yours, very optimistic,
Guy